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The case of Costa Rica (and Latin America): high acceptance of genetic research and data sharing, but low representation

Wed Jan 12, 2022 2pm – 3pm United Kingdom Time
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How do Costa Ricans view genomic data sharing? How willing are they to share data, and who do they trust?

The Your DNA, Your Say global survey explores the attitudes of individuals regarding genomic data sharing for research, which allows comparisons on how these views vary between regions of the world and countries. Gabriela Chavarría-Soley and Henriette Raventós are researchers at the University of Costa Rica. Their work has focused on identifying genetic risk variants for severe mental disorders in Costa Rica. In this seminar, they will describe their two-decade experience with participants in genetic studies in light of the Your DNA, Your Say results for the country. They will focus on how the willingness to share genomic data depends on the later use of the data, and on who the most trusted persons with this information are. Preliminary patterns seen in Latin American countries as a group will also be discussed. Additionally, they will present recent qualitative results regarding beliefs and practices in the area of genetics of mental disorders in a group of social actors in Costa Rica. The implication of these findings for the historical underrepresentation of Latin populations in genomic studies will be discussed.

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