Your DNA, Your Say collaborators May 2021

ydys@wgc.org.uk

9 participants
4 discussions

Video of seminar now available: ‘Your DNA, Your Say’ - a global public attitudes study on genomic data sharing

by Lauren Robarts

Hello, Many thanks to those of you who attended the first in our YDYS seminar series yesterday, especially as it involved logging into Zoom at quite unsociable hours for some of you! For those who were interested in attending but unable to, the full talk including Q&A is now available to watch on our website (also for those of you who enjoyed it so much, you’d like to watch it again!) You can access the recording here: bit.ly/SERseminarYDYS<http://bit.ly/SERseminarYDYS> This is a quick reminder, as well, that the next one will be delivered by Richard Milne on 21 July at 16:00 BST. More details to follow in due course. Seminar synopsis: How do people feel about their genomic data being incorporated into Big Data? This project aims to find out. The 'Your DNA, Your Say' project is a global online survey gathering public attitudes towards genomic data sharing. The survey contains 9 innovative films that explain what genomic data sharing is through the eyes of a little boy called Charlie. The findings will offer a public voice to policy created by the Global Alliance for Genomics and Health. Join Professor Anna Middleton as she provides an overview of how this global study was designed and how it evolved. This presentation is the first of a series which gives a voice to the international collaborators and the public audiences around the world who gave their views on genomics. Warm regards, Lauren Robarts Senior Manager Society and Ethics Research Tel: +44 (0)1223 495332 Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics> [cid:DDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home] Follow WGCethics on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/> Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society.

3 years, 2 months

Details for first YDYS Seminar, 26 May at 12:00 BST

by Lauren Robarts

Hello again, I am writing with further details for the first YDYS seminar, which will be given by Anna on Wednesday 26 March at 12:00 BST. The details for the seminar (including the Zoom link to use at the time) can be found here: bit.ly/SERseminarYDYS<http://bit.ly/SERseminarYDYS> Anyone is welcome so feel free to mention it to colleagues who may be interested. Attached is a banner that can be used to promote the talk, in case you’d like to share it on your social media channels. Tweets will also be going out from our team account, https://twitter.com/WGCethics?ref_src=twsrc%5Etfw<https://twitter.com/WGCethics?ref_src=twsrc^tfw>, in case you’d prefer to re-tweet. Warm regards, Lauren Robarts Senior Manager Society and Ethics Research Tel: +44 (0)1223 495332 Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics> [cid:DDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home] Follow WGCethics on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/> Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society. [cid:90059C36-7FD9-42FA-A6F1-B908B54A91AB@home]

3 years, 2 months

Latest YDYS paper published!

by Richard Milne

Dear all Just an update to say that the paper that many of you commented on towards the end of last year has now been published in Genome Medicine. Thanks so much for your comments and contributions, and please do share with your networks. I hope to be in touch in the next few weeks with the draft of the latest meta-analysis. https://genomemedicine.biomedcentral.com/articles/10.1186/s13073-021-00903-0 [genomemedicine.biomedcentral.com]<https://urldefense.proofpoint.com/v2/url?u=https-3A__genomemedicine.biomedc…> Best wishes Richard

3 years, 2 months

Upcoming dates in the YDYS Seminar Series

by Lauren Robarts

Hello, Many thanks to those of you who have expressed interest in delivering a seminar as a part of our YDYS Seminar Series. I’ll be in touch to follow up with those who said they would like to present to discuss scheduling over the coming months. In the meantime I wanted to alert you to the dates and times of the first three sessions so that you can mark your calendars. Coming up in a couple of weeks: Wednesday 26 May at 12:00 UK time ‘Your DNA, Your Say’ - a global public attitudes study on genomic data sharing Anna Middleton will provide an overview of how this global study was designed and how it evolved. This presentation is the first of a series which gives a voice to our international collaborators and the public audiences around the world who gave their views on genomics. Further down the line: Wednesday 21 July at 16:00 UK time - Richard Milne will be presenting Tuesday 5 October at 10:00 UK time - Yali Cong will be presenting I’ll send another email before too long with further information for Anna’s talk, including the Zoom link. Warm regards, Lauren Robarts Senior Manager Society and Ethics Research Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics> [cid:DDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home] Follow WGCethics on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/> Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society.

3 years, 2 months

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Your DNA, Your Say collaborators May 2021