Your DNA, Your Say collaborators January 2022

ydys@wgc.org.uk

2 participants
4 discussions

Webinar video available - The case of Costa Rica (and Latin America): high acceptance of genetic research and data sharing, but low representation

by Lauren Robarts

Hello, Many thanks to those who joined our webinar on Wednesday 12 January, The case of Costa Rica (and Latin America): high acceptance of genetic research and data sharing, but low representation given by Gabriela Chavarría-Soley and Henriette Raventós. In case you hoped to catch it but were unable, the video and slides are now available online here: bit.ly/ESseminarYDYSCostaRica<http://bit.ly/ESseminarYDYSCostaRica> Have a lovely weekend, Lauren Robarts Senior Manager Society and Ethics Research Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics> [cid:DDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home] Follow ethicsWCS on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/> Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society.

2 years, 3 months

Webinar Reminder - Today at 14:00 GMT - Gabriela Chavarría-Soley & Henriette Raventós present on YDYS Costa Rica

by Lauren Robarts

Hello, I’m writing with a reminder of our YDYS webinar, taking place today at 14:00 GMT and delivered by Gabriela Chavarría-Soley and Henriette Raventós: The case of Costa Rica (and Latin America): high acceptance of genetic research and data sharing, but low representation How do Costa Ricans view genomic data sharing? How willing are they to share data, and who do they trust? Click here for the Zoom webinar link: bit.ly/ESseminarYDYSCostaRica<http://bit.ly/ESseminarYDYSCostaRica>. For those unable to attend live, a video of the seminar will also be viewable here within a few days of the event. Warm regards, Lauren Robarts Senior Manager Society and Ethics Research Tel: +44 (0)1223 495332 Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics> [cid:DDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home] Follow ethicsWCS on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/> Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society.

2 years, 3 months

Invitation: The case of Costa Rica (and Latin America): high acceptan... @ Wed Jan 12, 2022 2pm - 3pm (GMT) (ydys@wgc.org.uk) [EXT] [Possible Spoof]

by lf8＠sanger.ac.uk

You have been invited to the following event. Title: The case of Costa Rica (and Latin America): high acceptance of genetic research and data sharing, but low representation https://urldefense.proofpoint.com/v2/url?u=https-3A__sanger.zoom.us_j_93844… Passcode: E&Sseminar Or One tap mobile : US: +13126266799,,93844792012#,,,,*319806# or +13462487799,,93844792012#,,,,*319806# Or Telephone: Dia l(for higher quality, dial a number based on your current location): US: +1 312 626 6799 or +1 346 248 7799 or +1 646 558 8656 or +1 669 900 9128 or +1 253 215 8782 or +1 301 715 8592 Webinar ID: 938 4479 2012 Passcode: 319806 International numbers available: https://urldefense.proofpoint.com/v2/url?u=https-3A__sanger.zoom.us_u_adKez… How do Costa Ricans view genomic data sharing? How willing are they to share data, and who do they trust? The Your DNA, Your Say global survey explores the attitudes of individuals regarding genomic data sharing for research, which allows comparisons on how these views vary between regions of the world and countries. Gabriela Chavarría-Soley and Henriette Raventós are researchers at the University of Costa Rica. Their work has focused on identifying genetic risk variants for severe mental disorders in Costa Rica. In this seminar, they will describe their two-decade experience with participants in genetic studies in light of the Your DNA, Your Say results for the country. They will focus on how the willingness to share genomic data depends on the later use of the data, and on who the most trusted persons with this information are. Preliminary patterns seen in Latin American countries as a group will also be discussed. Additionally, they will present recent qualitative results regarding beliefs and practices in the area of genetics of mental disorders in a group of social actors in Costa Rica. The implication of these findings for the historical underrepresentation of Latin populations in genomic studies will be discussed. More info: https://urldefense.proofpoint.com/v2/url?u=https-3A__bit.ly_ESseminarYDYSCo… When: Wed Jan 12, 2022 2pm – 3pm United Kingdom Time Where: https://urldefense.proofpoint.com/v2/url?u=https-3A__sanger.zoom.us_j_93844… Calendar: ydys(a)wgc.org.uk Who: * lf8(a)sanger.ac.uk - organizer * ydys(a)wgc.org.uk Event details: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… Invitation from Google Calendar: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… You are receiving this courtesy email at the account ydys(a)wgc.org.uk because you are an attendee of this event. To stop receiving future updates for this event, decline this event. Alternatively you can sign up for a Google account at https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… and control your notification settings for your entire calendar. Forwarding this invitation could allow any recipient to send a response to the organizer and be added to the guest list, or invite others regardless of their own invitation status, or to modify your RSVP. Learn more at https://urldefense.proofpoint.com/v2/url?u=https-3A__support.google.com_cal…

2 years, 3 months

Happy 2022! Reminder of YDYS Costa Rica seminar - 12 January @ 14:00 GMT

by Lauren Robarts

Hello, Happy New Year! I hope you all had a nice and restful break. I’m writing with a reminder of our next YDYS webinar: Wednesday 12 January 2022 at 14:00 GMT The case of Costa Rica (and Latin America): high acceptance of genetic research and data sharing, but low representation by Gabriela Chavarría-Soley and Henriette Raventós Further information including the Zoom link can be found here: bit.ly/ESseminarYDYSCostaRic<http://bit.ly/ESseminarYDYSCostaRica>a<http://bit.ly/ESseminarYDYSCostaRica> I’ll also send the calendar invite to the YDYS email address so if you’d like to attend you will be able to find the Zoom link there as well. Attached is a banner image that can be used to promote the event on social media, feel free to share to alert any other potentially interested parties! Warm regards, Lauren Robarts Senior Manager Society and Ethics Research Tel: +44 (0)1223 495332 Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics> [cid:DDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home] Follow ethicsWCS on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/> Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society. [cid:E0682E04-587E-4424-BAAB-9A3CBD98F472@Home]

2 years, 3 months

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Your DNA, Your Say collaborators January 2022