Your DNA, Your Say collaborators August 2022

ydys@wgc.org.uk

1 participants
1 discussions

Catch up on our webinar: Perspectives of the Irish public on the use of their genetic data for research

by Emma Garlick

[cid:image001.jpg@01D8B8A7.9A0F1AC0] Dear colleagues, Thank you to those of you who attended our Engagement and Society Seminar, on perspectives of the Irish public on the use of their genetic data for research from our Your DNA Your Say Series. If you missed it, you can watch the full recording here<https://societyandethicsresearch.wellcomeconnectingscience.org/catalogue/pe…>. In this seminar, Dr Ciara Staunton, Senior Researcher at the Institute for Biomedicine, Eurac Research, discussed the results of a survey of 1000 participants in Ireland about their views on the use of their genetic data in research. She highlighted concerns they have about potential harms, who can access their genetic data for research, and their preferences on the governance of their genetic data. Vicky McGrath, CEO of Rare Diseases Ireland, responded to these findings and discussed what they mean for patients with rare diseases in Ireland. We look forward to inviting you to our next seminar. Best wishes, The Engagement and Society team, Connecting Science *** [wcs_emailsig]<https://www.wellcomeconnectingscience.org/> Wellcome Connecting Science | Wellcome Genome Campus | Hinxton | CB10 1RQ | UK Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society.

1 year, 7 months

2024

2023

2022

2021

2020

Your DNA, Your Say collaborators August 2022