Your DNA, Your Say collaborators March 2022

ydys@wgc.org.uk

2 participants
4 discussions

Re: The next YDYS Seminar - 30th March 10am BST

by Emma Garlick

Hello All, Just a quick prompt to let you know the next seminar starts in 40 minutes – 10am UK time. The zoom link and details can be found here: https://bit.ly/ESseminarYDYSIndia Hope to (virtually) see you there! Best Wishes Emma Emma Garlick Administrator (Research & Dialogue / Creatives) Working days: Tuesday, Wednesday and Friday typically Engagement & Society Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics> [/var/folders/41/m6gk958n6zb8n8nsdq3dpv0m000llh/T/com.microsoft.Outlook/WebArchiveCopyPasteTempFiles/cidDDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home] Follow ethicsWCS on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/> Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society. From: Emma Garlick <emma.garlick(a)wellcomeconnectingscience.org> Date: Friday, 25 March 2022 at 07:41 To: "ydys(a)wgc.org.uk" <ydys(a)wgc.org.uk> Subject: YDYS - The next YDYS Seminar - 30th March 10am BST Hello All, I hope you are well! We are holding the next YDYS webinar which will be delivered by Qurratulain Annie Hasan on Wednesday March 30th at 10am UK time. Please see below for more details: Wednesday 30th March 2022 10:00-11:00 BST Dr. Qurratulain Annie Hasan The role of awareness in DNA data sharing and public opinion in India — challenges observed The foundation of the study ‘Your DNA, Your Say’ rests on the willingness of individuals around the world to share data about themselves which is then made available to clinicians and researchers and society at large for health care. Trust is an important factor in sharing DNA information. However, during analysis of Indian data, it was evident that people’s awareness about DNA has to be assessed before we can establish their willingness to donate. In this seminar Dr. Qurratulain (Annie) Hasan, Sr. Consultant & HOD, Research Director at the Department of Genetics and Molecular Medicine, Kamineni Hospitals, Hyderabad, India along with Swayamsiddha Sahoo, Research Trainee under Dr. Hasan, who has completed her MA in Public Policy and Governance from Tata Institute of Social Sciences, Hyderabad, India; will discuss their methodology and findings. They will also elaborate on how variables like gender, age and level of education are factors that are decisive regarding awareness to DNA and how their awareness plays an important role in building trust to donate their DNA data. They will also try address the staggering questions pertaining to Big Data, DNA and Public Policy. Information on the webinar, including the Zoom link, can be found here: https://bit.ly/ESseminarYDYSIndia If you could share this with anyone you feel would be interested in attending, or on social media channels, that would be fantastic. Please find attached the banner we have created for twitter. Have a lovely weekend and hopefully see you virtually on Wednesday! Best Wishes Emma Emma Garlick Administrator (Research & Dialogue / Creative Team) Working days: Tuesday, Wednesday and Friday typically Engagement & Society Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics> [/var/folders/41/m6gk958n6zb8n8nsdq3dpv0m000llh/T/com.microsoft.Outlook/WebArchiveCopyPasteTempFiles/cidDDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home] Follow ethicsWCS on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/> Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society.

2 years, 6 months

Updated invitation: Webinar: The Role of Awareness in DNA Data Sharing and Pu... @ Wed Mar 30, 2022 10am - 11am (BST) (ydys@wgc.org.uk) [EXT]

by lf8＠sanger.ac.uk

This event has been changed. Title: Webinar: The Role of Awareness in DNA Data Sharing and Public Opinion in India — Challenges Observed Join from a PC, Mac, iPad, iPhone or Android device: Please click this URL to join. https://urldefense.proofpoint.com/v2/url?u=https-3A__sanger.zoom.us_s_97904… Passcode: E&Sseminar Description: The foundation of the study ‘Your DNA, Your Say’ rests on the willingness of individuals around the world to share data about themselves which is then made available to clinicians and researchers and society at large for health care. Trust is an important factor in sharing DNA information. However, during analysis of Indian data, it was evident that people’s awareness about DNA has to be assessed before we can establish their willingness to donate. In this seminar Dr. Qurratulain (Annie) Hasan, Sr. Consultant & HOD, Research Director at the Department of Genetics and Molecular Medicine, Kamineni Hospitals, Hyderabad, India along with Swayamsiddha Sahoo, Research Trainee under Dr. Hasan, who has completed her MA in Public Policy and Governance from Tata Institute of Social Sciences, Hyderabad, India; will discuss their methodology and findings. They will also elaborate on how variables like gender, age and level of education are factors that are decisive regarding awareness to DNA and how their awareness plays an important role in building trust to donate their DNA data. They will also try address the staggering questions pertaining to Big Data, DNA and Public Policy. Or One tap mobile: +13017158592,,97904602319#,,,,*7591691784# US (Washington DC) +13126266799,,97904602319#,,,,*7591691784# US (Chicago) Or join by phone: Dial(for higher quality, dial a number based on your current location): US: +1 301 715 8592 or +1 312 626 6799 or +1 346 248 7799 or +1 646 558 8656 or +1 669 900 9128 or +1 253 215 8782 Webinar ID: 979 0460 2319 Passcode: 7591691784 International numbers available: https://urldefense.proofpoint.com/v2/url?u=https-3A__sanger.zoom.us_u_abz8P… Or an H.323/SIP room system: H.323: 162.255.37.11 (US West) 162.255.36.11 (US East) 213.19.144.110 (Amsterdam Netherlands) 213.244.140.110 (Germany) Webinar ID: 979 0460 2319 Passcode: 7591691784 SIP: 97904602319(a)zoomcrc.com Passcode: 7591691784 When: Wed Mar 30, 2022 10am – 11am United Kingdom Time Where: https://urldefense.proofpoint.com/v2/url?u=https-3A__sanger.zoom.us_s_97904… For anyone on campus, the webinar is now planned in a hybrid format - please join Richard and others from the E&S team in person in Conference Centre Loft Room 2 (changed) Calendar: ydys(a)wgc.org.uk Who: * lf8(a)sanger.ac.uk - organizer * engagesociety(a)wellcomeconnectingscience.org * ydys(a)wgc.org.uk * baranova.gen(a)gmail.com * drjamuar(a)gmail.com * vyasjaya(a)gmail.com * poojarayasam(a)gmail.com * dhanlaxmis22(a)gmail.com * prochimadon(a)gmail.com * sultanafaradz(a)gmail.com * greenpastures(a)gmail.com * nrd121993(a)gmail.com * juliana.mh.lee(a)gmail.com * shalaka.patil1989(a)gmail.com * ankitar219(a)gmail.com * y.bhattacharya12(a)gmail.com * deepabhat(a)jssuni.edu.in * dongremayuresh0896(a)gmail.com Event details: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… Invitation from Google Calendar: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… You are receiving this courtesy email at the account ydys(a)wgc.org.uk because you are an attendee of this event. To stop receiving future updates for this event, decline this event. Alternatively you can sign up for a Google account at https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… and control your notification settings for your entire calendar. Forwarding this invitation could allow any recipient to send a response to the organizer and be added to the guest list, or invite others regardless of their own invitation status, or to modify your RSVP. Learn more at https://urldefense.proofpoint.com/v2/url?u=https-3A__support.google.com_cal…

2 years, 6 months

The next YDYS Seminar - 30th March 10am BST

by Emma Garlick

Hello All, I hope you are well! We are holding the next YDYS webinar which will be delivered by Qurratulain Annie Hasan on Wednesday March 30th at 10am UK time. Please see below for more details: Wednesday 30th March 2022 10:00-11:00 BST Dr. Qurratulain Annie Hasan The role of awareness in DNA data sharing and public opinion in India — challenges observed The foundation of the study ‘Your DNA, Your Say’ rests on the willingness of individuals around the world to share data about themselves which is then made available to clinicians and researchers and society at large for health care. Trust is an important factor in sharing DNA information. However, during analysis of Indian data, it was evident that people’s awareness about DNA has to be assessed before we can establish their willingness to donate. In this seminar Dr. Qurratulain (Annie) Hasan, Sr. Consultant & HOD, Research Director at the Department of Genetics and Molecular Medicine, Kamineni Hospitals, Hyderabad, India along with Swayamsiddha Sahoo, Research Trainee under Dr. Hasan, who has completed her MA in Public Policy and Governance from Tata Institute of Social Sciences, Hyderabad, India; will discuss their methodology and findings. They will also elaborate on how variables like gender, age and level of education are factors that are decisive regarding awareness to DNA and how their awareness plays an important role in building trust to donate their DNA data. They will also try address the staggering questions pertaining to Big Data, DNA and Public Policy. Information on the webinar, including the Zoom link, can be found here: https://bit.ly/ESseminarYDYSIndia If you could share this with anyone you feel would be interested in attending, or on social media channels, that would be fantastic. Please find attached the banner we have created for twitter. Have a lovely weekend and hopefully see you virtually on Wednesday! Best Wishes Emma Emma Garlick Administrator (Research & Dialogue / Creative Team) Working days: Tuesday, Wednesday and Friday typically Engagement & Society Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics> [/var/folders/41/m6gk958n6zb8n8nsdq3dpv0m000llh/T/com.microsoft.Outlook/WebArchiveCopyPasteTempFiles/cidDDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home] Follow ethicsWCS on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/> Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society.

2 years, 6 months

Invitation: Webinar: The Role of Awareness in DNA Data Sharing and Pu... @ Wed Mar 30, 2022 10am - 11am (BST) (ydys@wgc.org.uk) [EXT] [Possible Spoof]

by lf8＠sanger.ac.uk

You have been invited to the following event. Title: Webinar: The Role of Awareness in DNA Data Sharing and Public Opinion in India — Challenges Observed Join from a PC, Mac, iPad, iPhone or Android device: Please click this URL to join. https://urldefense.proofpoint.com/v2/url?u=https-3A__sanger.zoom.us_s_97904… Passcode: E&Sseminar Description: The foundation of the study ‘Your DNA, Your Say’ rests on the willingness of individuals around the world to share data about themselves which is then made available to clinicians and researchers and society at large for health care. Trust is an important factor in sharing DNA information. However, during analysis of Indian data, it was evident that people’s awareness about DNA has to be assessed before we can establish their willingness to donate. In this seminar Dr. Qurratulain (Annie) Hasan, Sr. Consultant & HOD, Research Director at the Department of Genetics and Molecular Medicine, Kamineni Hospitals, Hyderabad, India along with Swayamsiddha Sahoo, Research Trainee under Dr. Hasan, who has completed her MA in Public Policy and Governance from Tata Institute of Social Sciences, Hyderabad, India; will discuss their methodology and findings. They will also elaborate on how variables like gender, age and level of education are factors that are decisive regarding awareness to DNA and how their awareness plays an important role in building trust to donate their DNA data. They will also try address the staggering questions pertaining to Big Data, DNA and Public Policy. Or One tap mobile: +13017158592,,97904602319#,,,,*7591691784# US (Washington DC) +13126266799,,97904602319#,,,,*7591691784# US (Chicago) Or join by phone: Dial(for higher quality, dial a number based on your current location): US: +1 301 715 8592 or +1 312 626 6799 or +1 346 248 7799 or +1 646 558 8656 or +1 669 900 9128 or +1 253 215 8782 Webinar ID: 979 0460 2319 Passcode: 7591691784 International numbers available: https://urldefense.proofpoint.com/v2/url?u=https-3A__sanger.zoom.us_u_abz8P… Or an H.323/SIP room system: H.323: 162.255.37.11 (US West) 162.255.36.11 (US East) 213.19.144.110 (Amsterdam Netherlands) 213.244.140.110 (Germany) Webinar ID: 979 0460 2319 Passcode: 7591691784 SIP: 97904602319(a)zoomcrc.com Passcode: 7591691784 When: Wed Mar 30, 2022 10am – 11am United Kingdom Time Where: https://urldefense.proofpoint.com/v2/url?u=https-3A__sanger.zoom.us_s_97904… Calendar: ydys(a)wgc.org.uk Who: * lf8(a)sanger.ac.uk - organizer * engagesociety(a)wellcomeconnectingscience.org * ydys(a)wgc.org.uk Event details: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… Invitation from Google Calendar: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… You are receiving this courtesy email at the account ydys(a)wgc.org.uk because you are an attendee of this event. To stop receiving future updates for this event, decline this event. Alternatively you can sign up for a Google account at https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… and control your notification settings for your entire calendar. Forwarding this invitation could allow any recipient to send a response to the organizer and be added to the guest list, or invite others regardless of their own invitation status, or to modify your RSVP. Learn more at https://urldefense.proofpoint.com/v2/url?u=https-3A__support.google.com_cal…

2 years, 6 months

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Your DNA, Your Say collaborators March 2022