Hello,
Please see the below message from Charlotta of the Sweden YDYS team. FYI anyone subscribed to this group can send an email at any time to “YDYS(a)wgc.org.uk<mailto:YDYS@wgc.org.uk>” and it will reach everyone on this list.
Warm regards,
Lauren Robarts
Dear all of you from the global YDYS team,
I hope you all are fine.
It has been a while since we all met virtually. Obviously a pandemic came in the way for us meeting in person.
Me and my colleague Maria in Sweden, has sent an abstract to this year’s ESHG on the Swedish Rare diseases patient representative’s YDYS data. Gabriela has also sent an abstract on the Brazilian and Costa Rican data. Hopefully we will both be accepted.
If anyone else of you will be at the ESHG conference it would be really nice to meet and catch up over a coffee or so.
So, if you are to be at the ESHG in Berlin 1-4 June this year. Please sent me a mail and I will arrange a time and place for us to meet at the venue.
Looking forward to meet some of you then.
Take care
Charlotta
Vänliga hälsningar
Charlotta Ingvoldstad MalmgrenPhD, Genetisk vägledare
Centrum för sällsynta diagnoser, Klinisk genetik och Centrum för fostermedicin,
Karolinska universitetssjukhuset
Sammankallande Svenskt nätverk för information kring fosterdiagnostik, Snif
Sammankallande Etik och policygruppen, EoP, inom SFMG
Lauren Robarts
Production Manager - Creative Team
Engagement and Society
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