Hello,
I hope you are all well! I’m writing with a reminder for the next in our YDYS Seminar Series, as well as a save the date for the following one, the first of 2022. A quick note to say that our team name has recently changed from Society and Ethics Research to Engagement & Society, so our series names has now been updated to E&S Seminar Series.
Wednesday 10 November at 16:00 GMT
"For-profit companies don’t care about patients’ well-being” Data and sharing in Germany
by Torsten Voight and Barbara Prainsack
Further information, including the Zoom link can be found here: bit.ly/ESseminarYDYSGermany<http://bit.ly/ESseminarYDYSGermany>
*Feel free to promote this seminar with your circles, a banner image for social media is attached!
SAVE THE DATE
Wednesday 12 January 2022 at 14:00 GMT
Gabriela Chavarria Soley and Hanriette Raventos will present from the Costa Rican arm of the survey. More information to follow!
Warm regards,
Lauren Robarts
Senior Manager
Society and Ethics Research
Tel: +44 (0)1223 495332
Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK
wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics>
[cid:DDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home]
Follow ethicsWCS on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/>
Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society.
[cid:73A301F9-A61C-49EB-811D-AB52B483F98F@internal.sanger.ac.uk]
Hello,
Yali, thank you again so much for your wonderful talk on Tuesday!
The video and slides of Yali’s talk (Public Perspectives on Genetic Information: Is there an essential difference between China and the UK?) are now available here: bit.ly/SERseminarYDYSChina<http://bit.ly/SERseminarYDYSChina>.
The next one will be delivered by Barbara Prainsack and Torsten Voigt on Wednesday 10 November at 16:00 GMT. More details to follow closer to the time!
Warm regards,
Lauren Robarts
Senior Manager
Society and Ethics Research
Tel: +44 (0)1223 495332
Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK
wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics>
[cid:DDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home]
Follow ethicsWCS on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/>
Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society.
Hello,
I hope you are all well! I’m writing with a reminder for our next YDYS Webinar, being delivered by Yali Cong, as well as a save the date for November instalment, which will be delivered by Barbara Prainsack and Torsten Voigt.
Tuesday 5 October
10:00-11:00 BST
Prof Yali Cong
Public Perspectives on Genetic Information: Is there an essential difference between China and the UK?
Data gathered by the Your DNA, Your Say survey, a global study on attitudes towards DNA and Big Data, has revealed significant similarities in the attitudes of people surveyed in China, India and Russia. Prof Yali Cong, our collaborator for the Chinese arm of Your DNA, Your Say, plans to conduct further analysis of this phenomenon in a literature review. In this seminar she will discuss her findings so far and how these attitudes compare to findings from the UK audience.
Yali is Professor in Bioethics, Dean of the Department of Medical Ethics and Health Law and was also the Chair of Peking University Institutional Review Board (PKU IRB) from 2010-2020. Prof. Cong got her PhD degree in Philosophy of Science and has a wide range of research interest in Research Ethics, Global Public Health Ethics and Medical Professionalism. She has published a variety of papers in the field of medical ethics. She is the current Chair of the China Medical Ethics Association for the term 2020 to 2022. She has been a collaborator on the Your DNA, Your Say study since 2019.
Information on the webinar, including the Zoom link, can be found here: bit.ly/SERseminarYDYSChina<http://bit.ly/SERseminarYDYSChina>
All are welcome to join! Attached is a promo image that can be used on Twitter, feel free to share it on your social media along with the above link if you are so inclined.
-SAVE THE DATE-
Wednesday 10 November
16:00-17:00 GMT
Prof Barbara Prainsack and Prof Torsten Voigt
More information to come
Have a lovely weekend and hope to see you via Zoom on Tuesday!
Warm regards,
Lauren Robarts
Senior Manager
Society and Ethics Research
Tel: +44 (0)1223 495332
Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK
wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics>
[cid:DDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home]
Follow ethicsWCS on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/>
Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society.
[cid:1F3A772A-5BAE-4A66-AEF2-A07DEDDB64ED@Home]
You have been invited to the following event.
Title: SER Seminar Series - Public Perspectives on Genetic Information: Is
there an essential difference between China and the UK? (Yali Cong)
Please click the link below to join the webinar:
https://urldefense.proofpoint.com/v2/url?u=https-3A__sanger.zoom.us_j_95314…
Passcode: SERseminar
Or One tap mobile :
United Kingdom: +442034815237,,95314452673#,,,,*8283812591# or
+442034815240,,95314452673#,,,,*8283812591#
Or Telephone:
Dial(for higher quality, dial a number based on your current location):
United Kingdom: +44 203 481 5237 or +44 203 481 5240 or +44 203 901 7895 or
+44 208 080 6591 or +44 208 080 6592 or +44 330 088 5830 or +44 131 460 1196
Webinar ID: 953 1445 2673
Passcode: 8283812591
International numbers available: https://urldefense.proofpoint.com/v2/url?u=https-3A__sanger.zoom.us_u_aewJi…
Data gathered by the Your DNA, Your Say survey, a global study on attitudes
towards DNA and Big Data, has revealed significant similarities in the
attitudes of people surveyed in China, India and Russia. Prof Yali Cong,
our collaborator for the Chinese arm of Your DNA, Your Say, plans to
conduct further analysis of this phenomenon in a literature review. In this
seminar she will discuss her findings so far and how these attitudes
compare to findings from the UK audience.
Yali is Professor in Bioethics, Dean of the Department of Medical Ethics
and Health Law and was also the Chair of Peking University Institutional
Review Board (PKU IRB) from 2010-2020. Prof. Cong got her PhD degree in
Philosophy of Science and has a wide range of research interest in Research
Ethics, Global Public Health Ethics and Medical Professionalism. She has
published a variety of papers in the field of medical ethics. She is the
current Chair of the China Medical Ethics Association for the term 2020 to
2022. She has been a collaborator on the Your DNA, Your Say study since
2019.
When: Tue 5 Oct 2021 10am – 11am United Kingdom Time
Where:
https://urldefense.proofpoint.com/v2/url?u=https-3A__sanger.zoom.us_j_95314…
Calendar: ydys(a)wgc.org.uk
Who:
* am33(a)sanger.ac.uk- creator
* ydys(a)wgc.org.uk
Event details:
https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca…
Invitation from Google Calendar: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca…
You are receiving this courtesy email at the account ydys(a)wgc.org.uk
because you are an attendee of this event.
To stop receiving future updates for this event, decline this event.
Alternatively, you can sign up for a Google Account at
https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… and control your notification
settings for your entire calendar.
Forwarding this invitation could allow any recipient to send a response to
the organiser and be added to the guest list, invite others regardless of
their own invitation status or to modify your RSVP. Learn more at
https://urldefense.proofpoint.com/v2/url?u=https-3A__support.google.com_cal…
Hello,
Many thanks to those who joined our seminar last Wednesday 21 July, Trust and trustworthiness in Genomic Data Sharing, by Richard Milne. The webinar video and PDF of the slides are now available on our website, here: bit.ly/SERseminarTrust<http://bit.ly/SERseminarTrust>
Mark your calendars for upcoming seminars!:
Tuesday 5 October 2021 at 10:00 UK time - Yali Cong will present on data from the Chinese arm
Wednesday 10 November 2021 at 16:00 UK time - Barbara Prainsack & Torsten Voight will present on data from the German arm
Warm regards,
Lauren Robarts
Senior Manager
Society and Ethics Research
Tel: +44 (0)1223 495332
Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK
wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics>
[cid:DDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home]
Follow ethicsWCS on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/>
Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society.
You have been invited to the following event.
Title: SER Seminar Series - Trust and trustworthiness in genomic data
sharing (Richard Milne)
When: Wed Jul 21, 2021 4pm – 5pm United Kingdom Time
Where: Save the date for now - more details to come
Calendar: ydys(a)wgc.org.uk
Who:
* lf8(a)sanger.ac.uk - organizer
* jerome.atutornu(a)wgc.org.uk
* angela.wilson(a)wgc.org.uk
* Alessia Costa
* jon.roberts(a)wellcomeconnectingscience.org
* Chris Patch
* anna.middleton(a)wgc.org.uk
* Richard Milne
* ydys(a)wgc.org.uk
Event details:
https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca…
Invitation from Google Calendar: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca…
You are receiving this courtesy email at the account ydys(a)wgc.org.uk
because you are an attendee of this event.
To stop receiving future updates for this event, decline this event.
Alternatively you can sign up for a Google account at
https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… and control your notification
settings for your entire calendar.
Forwarding this invitation could allow any recipient to send a response to
the organizer and be added to the guest list, or invite others regardless
of their own invitation status, or to modify your RSVP. Learn more at
https://urldefense.proofpoint.com/v2/url?u=https-3A__support.google.com_cal…
This event has been canceled.
Title: SER Seminar Series - Trust and trustworthiness in genomic data
sharing (Richard Milne)
When: Wed Jul 21, 2021 4pm – 5pm United Kingdom Time
Where: Save the date for now - more details to come
Calendar: ydys(a)wgc.org.uk
Who:
* lf8(a)sanger.ac.uk - creator
* Richard Milne
* Alessia Costa
* angela.wilson(a)wgc.org.uk
* anna.middleton(a)wgc.org.uk
* Chris Patch
* jerome.atutornu(a)wgc.org.uk
* jon.roberts(a)wellcomeconnectingscience.org
* ydys(a)wgc.org.uk
Invitation from Google Calendar: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca…
You are receiving this courtesy email at the account ydys(a)wgc.org.uk
because you are an attendee of this event.
To stop receiving future updates for this event, decline this event.
Alternatively you can sign up for a Google account at
https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… and control your notification
settings for your entire calendar.
Forwarding this invitation could allow any recipient to send a response to
the organizer and be added to the guest list, or invite others regardless
of their own invitation status, or to modify your RSVP. Learn more at
https://urldefense.proofpoint.com/v2/url?u=https-3A__support.google.com_cal…
You have been invited to the following event.
Title: SER Seminar Series - Trust and trustworthiness in genomic data
sharing (Richard Milne)
When: Wed Jul 21, 2021 4pm – 5pm United Kingdom Time
Where: Save the date for now - more details to come
Calendar: ydys(a)wgc.org.uk
Who:
* lf8(a)sanger.ac.uk - creator
* Richard Milne
* Alessia Costa
* angela.wilson(a)wgc.org.uk
* anna.middleton(a)wgc.org.uk
* Chris Patch
* jerome.atutornu(a)wgc.org.uk
* jon.roberts(a)wellcomeconnectingscience.org
* ydys(a)wgc.org.uk
Event details:
https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca…
Invitation from Google Calendar: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca…
You are receiving this courtesy email at the account ydys(a)wgc.org.uk
because you are an attendee of this event.
To stop receiving future updates for this event, decline this event.
Alternatively you can sign up for a Google account at
https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… and control your notification
settings for your entire calendar.
Forwarding this invitation could allow any recipient to send a response to
the organizer and be added to the guest list, or invite others regardless
of their own invitation status, or to modify your RSVP. Learn more at
https://urldefense.proofpoint.com/v2/url?u=https-3A__support.google.com_cal…
Hello,
Many thanks to those of you who attended the first in our YDYS seminar series yesterday, especially as it involved logging into Zoom at quite unsociable hours for some of you! For those who were interested in attending but unable to, the full talk including Q&A is now available to watch on our website (also for those of you who enjoyed it so much, you’d like to watch it again!) You can access the recording here: bit.ly/SERseminarYDYS<http://bit.ly/SERseminarYDYS>
This is a quick reminder, as well, that the next one will be delivered by Richard Milne on 21 July at 16:00 BST. More details to follow in due course.
Seminar synopsis:
How do people feel about their genomic data being incorporated into Big Data? This project aims to find out. The 'Your DNA, Your Say' project is a global online survey gathering public attitudes towards genomic data sharing. The survey contains 9 innovative films that explain what genomic data sharing is through the eyes of a little boy called Charlie. The findings will offer a public voice to policy created by the Global Alliance for Genomics and Health.
Join Professor Anna Middleton as she provides an overview of how this global study was designed and how it evolved.
This presentation is the first of a series which gives a voice to the international collaborators and the public audiences around the world who gave their views on genomics.
Warm regards,
Lauren Robarts
Senior Manager
Society and Ethics Research
Tel: +44 (0)1223 495332
Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK
wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics>
[cid:DDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home]
Follow WGCethics on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/>
Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society.