- Your DNA, Your Say collaborators - public-lists.sanger.ac.uk

Proposal for a Your DNA, Your Say Collection at Wellcome Open Research

by Richard Milne

Dear all, We're getting in touch to follow up discussions of publishing national or regional data from Your DNA, Your Say, and with a proposal for discussion at our meeting in January. Your DNA, Your Say has the potential to generate a large number of country and regional papers, as well as the meta-analyses papers. Our intention is to continue to direct the meta-analysis papers to international journals. However, we are also focussed on finding publication avenues for the national and regional analyses that are ongoing. To date, analyses of individual countries (e.g. Germany) or small groups of countries (e.g. UK/USA/Canada/Australia) have been published in journals such as the European Journal for Human Genetics. However, single journals are likely to be overwhelmed if multiple papers are targeted to them, while distributing the project's findings across multiple journals would make it more difficult to follow our findings across countries. Providing a central home for publication would mean that a reader could easily access publications across the study countries. We were recently contacted by Wellcome Open Research (WOR) (https://wellcomeopenresearch.org/) about the possibility of hosting our findings there. WOR is an online, open access journal owned by the Wellcome Trust and open to all Wellcome-funded research. This includes YDYS through the Sanger group (Anna et al.). WOR includes topic collections similar to an edited collection. We suggest that such a collection would be a great publication target for papers reporting country findings from Your DNA, Your Say, forming a collection on global public perceptions of sharing genomic and health data. In addition, alongside the YDYS research papers, we can also include invited commentaries and reflections (called Open Letters) on the implications of the findings. This would extend the reach of the project and contribute to the wider impact. We don't need to wait for all papers to be ready before submission - once four or so papers have been published, the collection would be launched. However, we would propose aiming to have all papers in by March 2021 with the aim of launching the collection then. WOR enables rapid publication, because the papers are made available online and peer review occurs post-publication. Peer review is open, and reviews are published alongside the paper. Existing collections can be seen here https://wellcomeopenresearch.org/collections Further details are here https://wellcomeopenresearch.org/for-authors/article-guidelines We're happy to talk about this in more detail at our meeting in January but it would be great to hear your thoughts, specifically: 1. Is this something you're interested in and are you happy to target your YDYS country level analysis to a WOR collection? 2. Do you expect to have your analysis ready to submit by February/March 2021? 3. Are you able to propose 1-2 reviewers for your paper, at least one of whom should be outside your institution and country? We hope you're keeping well, and we're looking forward to speaking soon Richard and Anna Dr Richard Milne Senior Social Scientist, Society and Ethics Research, Wellcome Genome Campus Honorary Senior Visiting Fellow, University of Cambridge Co-Lead, ELSI theme, Cambridge Public Health [ORCID iD icon] orcid.org/0000-0002-8770-2384<https://orcid.org/0000-0002-8770-2384>

1 month, 1 week

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YDYS Collaborators Virtual Meeting - Thurs 21 Jan @ 11:30 UK time - Zoom

by Lauren Robarts

Hello, Many thanks for completing the Doodle Poll to schedule the next YDYS collaborator meeting in early 2021. The most popular option was Thursday 21 January at 11:30 UK time and so I have just sent out a calendar invite for this from Anna’s diary. The Zoom details are included there, and are also below. I will send an email closer to the time with an agenda, in the meantime, in case we are not in touch again before then, have a lovely festive period! Topic: YDYS Collaborators Virtual Meeting Time: Jan 21, 2021 11:30 AM London Join Zoom Meeting https://sanger.zoom.us/j/5023046014?pwd=QnRwWTJkZ1FxRXBxOFUzU3B0cW81UT09 Dial by your location +44 330 088 5830 United Kingdom Find your local number: https://sanger.zoom.us/u/aenK5drVNL Meeting ID: 502 304 6014 Passcode: 283450 Warm regards, Lauren Robarts Senior Manager Wellcome Genome Campus Society and Ethics Research | Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wgc.org.uk/ethics<http://wgc.org.uk/ethics> Follow WGCethics on Twitter<https://twitter.com/WGCethics> | YouTube<https://www.youtube.com/channel/UCASglZ45HDb5b7r8aNJP56w> | blog<https://genomethicsblog.org> [cid:image001.png@01D6BE59.FDCDFB70] Wellcome Genome Campus Society and Ethics Research is part of Connecting Science, which enables everyone to explore genomic science and its impact on research, health and society.

1 month, 2 weeks

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Doodle Poll to schedule next YDYS Collaborator Virtual Meeting (January 2021)

by Lauren Robarts

Hello, I hope everyone is well. I am writing to get the ball rolling on planning the next YDYS collaborator virtual meeting for January 2021. Please use the following Doodle Poll (https://doodle.com/poll/e6etb2at3k8uekd5) to indicate your availability. Since the clocks have changed the differences across time zones are unfortunately even more extreme, so there is a real challenge in finding a time in the day that is appropriate for everyone. As with the last Doodle Poll it is thus possible to indicate “if need be”. While it would be great to get as many people as possible on a single Zoom, if needed we can explore the possibility of planning more than one meeting to account for the big differences in time zones. Kindly complete this Doodle poll by Friday 27 November. Warm regards, Lauren Robarts Senior Manager Tel: +44 (0) 01223 495332 Wellcome Genome Campus Society and Ethics Research | Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wgc.org.uk/ethics<http://wgc.org.uk/ethics> [cid:9452adc824faa7de911d7b4abfa5e405f4dad76e41@Cherwell.com] Wellcome Genome Campus Society and Ethics Research is part of Connecting Science, which enables everyone to explore genomic science and its impact on research, health and society.

2 months

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[EXT]

by Елена Баранова

Dear colleagues, Thank you for the invitation. Here is my e-mail: baranova.gen(a)gmail.com wish best regards, Elena Baranova Assistant professor Russian Medical Academy of Continuous Professional Education Department of medical genetics m: (Viber, WhatsApp): +7-916-427-21-85 w: https://urldefense.proofpoint.com/v2/url?u=http-3A__www.genetics-2Dinfo.ru&… e: baranova.gen(a)gmail.com s: baranovageneticist

2 months, 3 weeks

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YDYS [EXT]

by izhevskaya＠med-gen.ru

2 months, 3 weeks

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Re: Welcome to the "Your DNA, Your Say collaborators" mailing list [EXT]

by 丛亚丽

thanks for invitation. happy to join the email group Yali Yali CongMedical Ethics Program Peking University Health Science Center Yifu Teaching Building, 601# 38 Xueyuan Road, Haidian District Beijing, 100191 Cellphone: 86-18001353160 Email: ethics(a)bjmu.edu.cn > -----原始邮件----- > 发件人: ydys-request(a)wgc.org.uk > 发送时间: 2020-10-22 22:25:35 (星期四) > 收件人: ethics(a)bjmu.edu.cn > 抄送: > 主题: Welcome to the "Your DNA, Your Say collaborators" mailing list > > Welcome to the "Your DNA, Your Say collaborators" mailing list! > > To post to this list, send your email to: > > ydys(a)wgc.org.uk > > You can unsubscribe or make adjustments to your options via email by > sending a message to: > > ydys-request(a)wgc.org.uk > > with the word 'help' in the subject or body (don't include the > quotes), and you will get back a message with instructions. You will > need your password to change your options, but for security purposes, > this password is not included here. If you have forgotten your > password you will need to reset it via the web UI. > > > -- > The Wellcome Sanger Institute is operated by Genome Research > Limited, a charity registered in England with number 1021457 and a > company registered in England with number 2742969, whose registered > office is 215 Euston Road, London, NW1 2BE. ------------------------------

2 months, 3 weeks

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mailadress for list [EXT]

by 曹金红

Dear Thanks for your invitation. Best regards Jinhong Cao Wuhan University

2 months, 3 weeks

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mailadress for list [EXT]

by Charlotta Ingvoldstad Malmgren

Thank you for the invitation. Here is my mailadress Charlotta.ingvoldstad-malmgren(a)sll.se Kindest regards Vänliga hälsningar Charlotta Ingvoldstad Malmgren Genetisk vägledare Centrum för sällsynta diagnoser, Klinisk genetik samt Centrum för fostermedicin Karolinska universitetssjukhuset

2 months, 3 weeks

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this is mine [EXT]

by Vigdís Stefánsdóttir

2 months, 3 weeks

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mailing list [EXT]

by Álvaro Mendes

Thank you! -- *Álvaro Mendes* Assistant Researcher UnIGENe | Centre for Preventive and Predictive Genetics IBMC | i3S | University of Porto | https://urldefense.proofpoint.com/v2/url?u=http-3A__www.i3s.up.pt&d=DwIFaQ&… Phone: +351 226 074 942, ext. 6181 | +351 962 825 534 E-mail: alvaro.mendes(a)ibmc.up.pt

2 months, 3 weeks

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2021

2020

Your DNA, Your Say collaborators ----- 2021 ----- January 2021 ----- 2020 ----- December 2020 November 2020 October 2020

Your DNA, Your Say collaborators