Dear all,
We're getting in touch to follow up discussions of publishing national or regional data from Your DNA, Your Say, and with a proposal for discussion at our meeting in January.
Your DNA, Your Say has the potential to generate a large number of country and regional papers, as well as the meta-analyses papers. Our intention is to continue to direct the meta-analysis papers to international journals. However, we are also focussed on finding publication avenues for the national and regional analyses that are ongoing.
To date, analyses of individual countries (e.g. Germany) or small groups of countries (e.g. UK/USA/Canada/Australia) have been published in journals such as the European Journal for Human Genetics. However, single journals are likely to be overwhelmed if multiple papers are targeted to them, while distributing the project's findings across multiple journals would make it more difficult to follow our findings across countries. Providing a central home for publication would mean that a reader could easily access publications across the study countries.
We were recently contacted by Wellcome Open Research (WOR) (https://wellcomeopenresearch.org/) about the possibility of hosting our findings there. WOR is an online, open access journal owned by the Wellcome Trust and open to all Wellcome-funded research. This includes YDYS through the Sanger group (Anna et al.).
WOR includes topic collections similar to an edited collection. We suggest that such a collection would be a great publication target for papers reporting country findings from Your DNA, Your Say, forming a collection on global public perceptions of sharing genomic and health data. In addition, alongside the YDYS research papers, we can also include invited commentaries and reflections (called Open Letters) on the implications of the findings. This would extend the reach of the project and contribute to the wider impact.
We don't need to wait for all papers to be ready before submission - once four or so papers have been published, the collection would be launched. However, we would propose aiming to have all papers in by March 2021 with the aim of launching the collection then.
WOR enables rapid publication, because the papers are made available online and peer review occurs post-publication. Peer review is open, and reviews are published alongside the paper.
Existing collections can be seen here https://wellcomeopenresearch.org/collections Further details are here https://wellcomeopenresearch.org/for-authors/article-guidelines
We're happy to talk about this in more detail at our meeting in January but it would be great to hear your thoughts, specifically:
1. Is this something you're interested in and are you happy to target your YDYS country level analysis to a WOR collection?
2. Do you expect to have your analysis ready to submit by February/March 2021?
3. Are you able to propose 1-2 reviewers for your paper, at least one of whom should be outside your institution and country?
We hope you're keeping well, and we're looking forward to speaking soon
Richard and Anna
Dr Richard Milne
Senior Social Scientist, Society and Ethics Research, Wellcome Genome Campus
Honorary Senior Visiting Fellow, University of Cambridge
Co-Lead, ELSI theme, Cambridge Public Health
[ORCID iD icon] orcid.org/0000-0002-8770-2384<https://orcid.org/0000-0002-8770-2384>
Hello,
Many thanks for completing the Doodle Poll to schedule the next YDYS collaborator meeting in early 2021. The most popular option was Thursday 21 January at 11:30 UK time and so I have just sent out a calendar invite for this from Anna’s diary. The Zoom details are included there, and are also below.
I will send an email closer to the time with an agenda, in the meantime, in case we are not in touch again before then, have a lovely festive period!
Topic: YDYS Collaborators Virtual Meeting
Time: Jan 21, 2021 11:30 AM London
Join Zoom Meeting
https://sanger.zoom.us/j/5023046014?pwd=QnRwWTJkZ1FxRXBxOFUzU3B0cW81UT09
Dial by your location
+44 330 088 5830 United Kingdom
Find your local number: https://sanger.zoom.us/u/aenK5drVNL
Meeting ID: 502 304 6014
Passcode: 283450
Warm regards,
Lauren Robarts
Senior Manager
Wellcome Genome Campus Society and Ethics Research | Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK
wgc.org.uk/ethics<http://wgc.org.uk/ethics>
Follow WGCethics on Twitter<https://twitter.com/WGCethics> | YouTube<https://www.youtube.com/channel/UCASglZ45HDb5b7r8aNJP56w> | blog<https://genomethicsblog.org>
[cid:image001.png@01D6BE59.FDCDFB70]
Wellcome Genome Campus Society and Ethics Research is part of Connecting Science, which enables everyone to explore genomic science and its impact on research, health and society.
Hello,
I hope everyone is well. I am writing to get the ball rolling on planning the next YDYS collaborator virtual meeting for January 2021. Please use the following Doodle Poll (https://doodle.com/poll/e6etb2at3k8uekd5) to indicate your availability. Since the clocks have changed the differences across time zones are unfortunately even more extreme, so there is a real challenge in finding a time in the day that is appropriate for everyone. As with the last Doodle Poll it is thus possible to indicate “if need be”. While it would be great to get as many people as possible on a single Zoom, if needed we can explore the possibility of planning more than one meeting to account for the big differences in time zones.
Kindly complete this Doodle poll by Friday 27 November.
Warm regards,
Lauren Robarts
Senior Manager
Tel: +44 (0) 01223 495332
Wellcome Genome Campus Society and Ethics Research | Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK
wgc.org.uk/ethics<http://wgc.org.uk/ethics>
[cid:9452adc824faa7de911d7b4abfa5e405f4dad76e41@Cherwell.com]
Wellcome Genome Campus Society and Ethics Research is part of Connecting Science, which enables everyone to explore genomic science and its impact on research, health and society.
Dear colleagues,
Thank you for the invitation.
Here is my e-mail:
baranova.gen(a)gmail.com
wish best regards,
Elena Baranova
Assistant professor
Russian Medical Academy of Continuous Professional Education
Department of medical genetics
m: (Viber, WhatsApp): +7-916-427-21-85
w: https://urldefense.proofpoint.com/v2/url?u=http-3A__www.genetics-2Dinfo.ru&…
e: baranova.gen(a)gmail.com
s: baranovageneticist
thanks for invitation. happy to join the email group
Yali
Yali CongMedical Ethics Program
Peking University Health Science Center
Yifu Teaching Building, 601#
38 Xueyuan Road, Haidian District
Beijing, 100191
Cellphone: 86-18001353160
Email: ethics(a)bjmu.edu.cn
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------------------------------
Thank you for the invitation. Here is my mailadress
Charlotta.ingvoldstad-malmgren(a)sll.se
Kindest regards
Vänliga hälsningar
Charlotta Ingvoldstad Malmgren
Genetisk vägledare
Centrum för sällsynta diagnoser, Klinisk genetik
samt
Centrum för fostermedicin
Karolinska universitetssjukhuset