- Your DNA, Your Say collaborators - public-lists.sanger.ac.uk

Trust and trustworthiness in Genomic Data Sharing webinar - video and slides now available

by Lauren Robarts

Hello, Many thanks to those who joined our seminar last Wednesday 21 July, Trust and trustworthiness in Genomic Data Sharing, by Richard Milne. The webinar video and PDF of the slides are now available on our website, here: bit.ly/SERseminarTrust<http://bit.ly/SERseminarTrust> Mark your calendars for upcoming seminars!: Tuesday 5 October 2021 at 10:00 UK time - Yali Cong will present on data from the Chinese arm Wednesday 10 November 2021 at 16:00 UK time - Barbara Prainsack & Torsten Voight will present on data from the German arm Warm regards, Lauren Robarts Senior Manager Society and Ethics Research Tel: +44 (0)1223 495332 Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics> [cid:DDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home] Follow ethicsWCS on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/> Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society.

1 month, 3 weeks

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Invitation: SER Seminar Series - Trust and trustworthiness in genomic... @ Wed Jul 21, 2021 4pm - 5pm (BST) (ydys@wgc.org.uk) [EXT] [Possible Spoof]

by lf8＠sanger.ac.uk

You have been invited to the following event. Title: SER Seminar Series - Trust and trustworthiness in genomic data sharing (Richard Milne) When: Wed Jul 21, 2021 4pm – 5pm United Kingdom Time Where: Save the date for now - more details to come Calendar: ydys(a)wgc.org.uk Who: * lf8(a)sanger.ac.uk - organizer * jerome.atutornu(a)wgc.org.uk * angela.wilson(a)wgc.org.uk * Alessia Costa * jon.roberts(a)wellcomeconnectingscience.org * Chris Patch * anna.middleton(a)wgc.org.uk * Richard Milne * ydys(a)wgc.org.uk Event details: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… Invitation from Google Calendar: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… You are receiving this courtesy email at the account ydys(a)wgc.org.uk because you are an attendee of this event. To stop receiving future updates for this event, decline this event. Alternatively you can sign up for a Google account at https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… and control your notification settings for your entire calendar. Forwarding this invitation could allow any recipient to send a response to the organizer and be added to the guest list, or invite others regardless of their own invitation status, or to modify your RSVP. Learn more at https://urldefense.proofpoint.com/v2/url?u=https-3A__support.google.com_cal…

2 months, 1 week

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Canceled event: SER Seminar Series - Trust and trustworthiness in genomic... @ Wed Jul 21, 2021 4pm - 5pm (BST) (ydys@wgc.org.uk) [EXT]

by lf8＠sanger.ac.uk

This event has been canceled. Title: SER Seminar Series - Trust and trustworthiness in genomic data sharing (Richard Milne) When: Wed Jul 21, 2021 4pm – 5pm United Kingdom Time Where: Save the date for now - more details to come Calendar: ydys(a)wgc.org.uk Who: * lf8(a)sanger.ac.uk - creator * Richard Milne * Alessia Costa * angela.wilson(a)wgc.org.uk * anna.middleton(a)wgc.org.uk * Chris Patch * jerome.atutornu(a)wgc.org.uk * jon.roberts(a)wellcomeconnectingscience.org * ydys(a)wgc.org.uk Invitation from Google Calendar: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… You are receiving this courtesy email at the account ydys(a)wgc.org.uk because you are an attendee of this event. To stop receiving future updates for this event, decline this event. Alternatively you can sign up for a Google account at https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… and control your notification settings for your entire calendar. Forwarding this invitation could allow any recipient to send a response to the organizer and be added to the guest list, or invite others regardless of their own invitation status, or to modify your RSVP. Learn more at https://urldefense.proofpoint.com/v2/url?u=https-3A__support.google.com_cal…

2 months, 1 week

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Invitation: SER Seminar Series - Trust and trustworthiness in genomic... @ Wed Jul 21, 2021 4pm - 5pm (BST) (ydys@wgc.org.uk) [EXT] [Possible Spoof]

by lf8＠sanger.ac.uk

You have been invited to the following event. Title: SER Seminar Series - Trust and trustworthiness in genomic data sharing (Richard Milne) When: Wed Jul 21, 2021 4pm – 5pm United Kingdom Time Where: Save the date for now - more details to come Calendar: ydys(a)wgc.org.uk Who: * lf8(a)sanger.ac.uk - creator * Richard Milne * Alessia Costa * angela.wilson(a)wgc.org.uk * anna.middleton(a)wgc.org.uk * Chris Patch * jerome.atutornu(a)wgc.org.uk * jon.roberts(a)wellcomeconnectingscience.org * ydys(a)wgc.org.uk Event details: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… Invitation from Google Calendar: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… You are receiving this courtesy email at the account ydys(a)wgc.org.uk because you are an attendee of this event. To stop receiving future updates for this event, decline this event. Alternatively you can sign up for a Google account at https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… and control your notification settings for your entire calendar. Forwarding this invitation could allow any recipient to send a response to the organizer and be added to the guest list, or invite others regardless of their own invitation status, or to modify your RSVP. Learn more at https://urldefense.proofpoint.com/v2/url?u=https-3A__support.google.com_cal…

2 months, 1 week

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Video of seminar now available: ‘Your DNA, Your Say’ - a global public attitudes study on genomic data sharing

by Lauren Robarts

Hello, Many thanks to those of you who attended the first in our YDYS seminar series yesterday, especially as it involved logging into Zoom at quite unsociable hours for some of you! For those who were interested in attending but unable to, the full talk including Q&A is now available to watch on our website (also for those of you who enjoyed it so much, you’d like to watch it again!) You can access the recording here: bit.ly/SERseminarYDYS<http://bit.ly/SERseminarYDYS> This is a quick reminder, as well, that the next one will be delivered by Richard Milne on 21 July at 16:00 BST. More details to follow in due course. Seminar synopsis: How do people feel about their genomic data being incorporated into Big Data? This project aims to find out. The 'Your DNA, Your Say' project is a global online survey gathering public attitudes towards genomic data sharing. The survey contains 9 innovative films that explain what genomic data sharing is through the eyes of a little boy called Charlie. The findings will offer a public voice to policy created by the Global Alliance for Genomics and Health. Join Professor Anna Middleton as she provides an overview of how this global study was designed and how it evolved. This presentation is the first of a series which gives a voice to the international collaborators and the public audiences around the world who gave their views on genomics. Warm regards, Lauren Robarts Senior Manager Society and Ethics Research Tel: +44 (0)1223 495332 Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics> [cid:DDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home] Follow WGCethics on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/> Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society.

3 months, 3 weeks

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Details for first YDYS Seminar, 26 May at 12:00 BST

by Lauren Robarts

Hello again, I am writing with further details for the first YDYS seminar, which will be given by Anna on Wednesday 26 March at 12:00 BST. The details for the seminar (including the Zoom link to use at the time) can be found here: bit.ly/SERseminarYDYS<http://bit.ly/SERseminarYDYS> Anyone is welcome so feel free to mention it to colleagues who may be interested. Attached is a banner that can be used to promote the talk, in case you’d like to share it on your social media channels. Tweets will also be going out from our team account, https://twitter.com/WGCethics?ref_src=twsrc%5Etfw<https://twitter.com/WGCethics?ref_src=twsrc^tfw>, in case you’d prefer to re-tweet. Warm regards, Lauren Robarts Senior Manager Society and Ethics Research Tel: +44 (0)1223 495332 Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics> [cid:DDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home] Follow WGCethics on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/> Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society. [cid:90059C36-7FD9-42FA-A6F1-B908B54A91AB@home]

3 months, 3 weeks

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Latest YDYS paper published!

by Richard Milne

Dear all Just an update to say that the paper that many of you commented on towards the end of last year has now been published in Genome Medicine. Thanks so much for your comments and contributions, and please do share with your networks. I hope to be in touch in the next few weeks with the draft of the latest meta-analysis. https://genomemedicine.biomedcentral.com/articles/10.1186/s13073-021-00903-0 [genomemedicine.biomedcentral.com]<https://urldefense.proofpoint.com/v2/url?u=https-3A__genomemedicine.biomedc…> Best wishes Richard

3 months, 3 weeks

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Upcoming dates in the YDYS Seminar Series

by Lauren Robarts

Hello, Many thanks to those of you who have expressed interest in delivering a seminar as a part of our YDYS Seminar Series. I’ll be in touch to follow up with those who said they would like to present to discuss scheduling over the coming months. In the meantime I wanted to alert you to the dates and times of the first three sessions so that you can mark your calendars. Coming up in a couple of weeks: Wednesday 26 May at 12:00 UK time ‘Your DNA, Your Say’ - a global public attitudes study on genomic data sharing Anna Middleton will provide an overview of how this global study was designed and how it evolved. This presentation is the first of a series which gives a voice to our international collaborators and the public audiences around the world who gave their views on genomics. Further down the line: Wednesday 21 July at 16:00 UK time - Richard Milne will be presenting Tuesday 5 October at 10:00 UK time - Yali Cong will be presenting I’ll send another email before too long with further information for Anna’s talk, including the Zoom link. Warm regards, Lauren Robarts Senior Manager Society and Ethics Research Wellcome Connecting Science| Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wellcomeconnectingscience.org/societyandethics <http://www.wellcomeconnectingscience.org/societyandethics> [cid:DDAFE692-2E61-449D-B8AF-09CF54DBBEDC@Home] Follow WGCethics on Twitter<https://twitter.com/WGCethics> | blog<https://genomethicsblog.org/> Wellcome Connecting Science enables everyone to explore genomic science and its impact on research, health and society.

4 months, 1 week

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Recurring webinar series on Your DNA, Your Say, from spring 2021

by Lauren Robarts

Hello, I hope you are all well. As a team we periodically host seminars and webinars with a mixture of our own team presenting as well as guest speakers. From Spring 2021 We would like to put on a recurring series of webinars focusing on Your DNA, Your Say and its findings. Anna and Richard would present for the first couple of instalments but then it would be lovely for us to host you, our collaborators, as guest speakers to present your findings to date, your experience with the translation process, etc. Let me know if this is something that you would be interested in participating in, and we can start to etch out a schedule. Warm regards, Lauren Robarts Senior Manager Wellcome Genome Campus Society and Ethics Research | Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wgc.org.uk/ethics<http://wgc.org.uk/ethics> Follow WGCethics on Twitter<https://twitter.com/WGCethics> | YouTube<https://www.youtube.com/channel/UCASglZ45HDb5b7r8aNJP56w> | blog<https://genomethicsblog.org> [cid:image001.png@01D6BE59.FDCDFB70] Wellcome Genome Campus Society and Ethics Research is part of Connecting Science, which enables everyone to explore genomic science and its impact on research, health and society.

5 months, 1 week

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Recurring webinar series on Your DNA, Your Say, from spring 2021

by Lauren Robarts

Hello, I hope you are all well. As a team we periodically host seminars and webinars with a mixture of our own team presenting as well as guest speakers. From spring 2021 We would like to put on a recurring series of webinars focusing on Your DNA, Your Say and its findings. Anna and Richard would present for the first couple of instalments but then it would be lovely for us to host you, our collaborators, as guest speakers to present your findings to date, your experience with the translation process, etc. Let me know if this is something that you would be interested in participating in, and we can start to etch out a schedule. Warm regards, Lauren Robarts Senior Manager Wellcome Genome Campus Society and Ethics Research | Wellcome Genome Campus | Hinxton | Cambridgeshire | CB10 1SA | UK wgc.org.uk/ethics<http://wgc.org.uk/ethics> Follow WGCethics on Twitter<https://twitter.com/WGCethics> | YouTube<https://www.youtube.com/channel/UCASglZ45HDb5b7r8aNJP56w> | blog<https://genomethicsblog.org> [cid:image001.png@01D6BE59.FDCDFB70] Wellcome Genome Campus Society and Ethics Research is part of Connecting Science, which enables everyone to explore genomic science and its impact on research, health and society.

6 months, 2 weeks

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2021

2020

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Your DNA, Your Say collaborators