You have been invited to the following event. Title: "For-profit companies don’t care about patients’ well-being” Data and sharing in Germany Join from a PC, Mac, iPad, iPhone or Android device: Please click this URL to join. https://urldefense.proofpoint.com/v2/url?u=https-3A__sanger.zoom.us_s_95135… Passcode: E&Sseminar Description: On average, Germans seem less willing to donate their medical and DNA data than residents of other countries. Why is this? Torsten Voigt and Barbara Prainsack will provide some answers on the basis of the German Your DNA, Your Say survey. An earlier paper from the YDYS study reported that residents of Germany were less willing to make their data available for research than people in English speaking countries. New data analysis by Torsten H. Voigt and Barbara Prainsack shows that the reasons for this are strongly related to concerns about disproportionate commercial profits, and asymmetries in benefits for corporate actors v. citizens and patients. Findings from the German YDYS data thus underscore the need to think about privacy and autonomy not merely (and perhaps not even primarily) as individual rights and interests but as collective concerns. Rather than asking “What is in it for me”, most people’s concerns regarding data sharing seem to be related to the question of “What kind of society do we want?” Torsten H. Voigt is the Managing Director of the Institute of Sociology and the Chair of the Technology and Diversity Program at RWTH Aachen University. Barbara Prainsack is the Head of Department of Political Science, and the Director of the interdisciplinary Research Platform Governance of Digital Practices, at the University of Vienna. Or One tap mobile: +13017158592,,95135393100#,,,,*9905643994# US (Washington DC) +13126266799,,95135393100#,,,,*9905643994# US (Chicago) Or join by phone: Dial(for higher quality, dial a number based on your current location): US: +1 301 715 8592 or +1 312 626 6799 or +1 646 558 8656 or +1 253 215 8782 or +1 346 248 7799 or +1 669 900 9128 Webinar ID: 951 3539 3100 Passcode: 9905643994 International numbers available: https://urldefense.proofpoint.com/v2/url?u=https-3A__sanger.zoom.us_u_acJis… Or an H.323/SIP room system: H.323: 162.255.37.11 (US West) 162.255.36.11 (US East) 213.19.144.110 (Amsterdam Netherlands) 213.244.140.110 (Germany) Webinar ID: 951 3539 3100 Passcode: 9905643994 SIP: 95135393100(a)zoomcrc.com Passcode: 9905643994 When: Wed Nov 10, 2021 4pm – 5pm United Kingdom Time Where: https://urldefense.proofpoint.com/v2/url?u=https-3A__sanger.zoom.us_s_95135… Calendar: ydys(a)wgc.org.uk Who: * lf8(a)sanger.ac.uk - organizer * ydys(a)wgc.org.uk Event details: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… Invitation from Google Calendar: https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… You are receiving this courtesy email at the account ydys(a)wgc.org.uk because you are an attendee of this event. To stop receiving future updates for this event, decline this event. Alternatively you can sign up for a Google account at https://urldefense.proofpoint.com/v2/url?u=https-3A__calendar.google.com_ca… and control your notification settings for your entire calendar. Forwarding this invitation could allow any recipient to send a response to the organizer and be added to the guest list, or invite others regardless of their own invitation status, or to modify your RSVP. Learn more at https://urldefense.proofpoint.com/v2/url?u=https-3A__support.google.com_cal…