You have been invited to the following event.
Title: The case of Costa Rica (and Latin America): high acceptance of
genetic research and data sharing, but low representation
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Webinar ID: 938 4479 2012
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How do Costa Ricans view genomic data sharing? How willing are they to
share data, and who do they trust?
The Your DNA, Your Say global survey explores the attitudes of individuals
regarding genomic data sharing for research, which allows comparisons on
how these views vary between regions of the world and countries. Gabriela
Chavarría-Soley and Henriette Raventós are researchers at the University of
Costa Rica. Their work has focused on identifying genetic risk variants
for severe mental disorders in Costa Rica. In this seminar, they will
describe their two-decade experience with participants in genetic studies
in light of the Your DNA, Your Say results for the country. They will focus
on how the willingness to share genomic data depends on the later use of
the data, and on who the most trusted persons with this information are.
Preliminary patterns seen in Latin American countries as a group will also
be discussed. Additionally, they will present recent qualitative results
regarding beliefs and practices in the area of genetics of mental disorders
in a group of social actors in Costa Rica. The implication of these
findings for the historical underrepresentation of Latin populations in
genomic studies will be discussed.
When: Wed Jan 12, 2022 2pm – 3pm United Kingdom Time
* lf8(a)sanger.ac.uk - organizer
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